What Are Some Organizations That Can Help a Family Cope With Down Syndrome

42 Great Down Syndrome Resources You Should Know About

March 21 marks World Down syndrome Twenty-four hours on the Special Needs Calendar. Globe Down syndrome Day is a global awareness 24-hour interval which has been officially observed past the United nations since 2012. The mean solar day is is focused on raising awareness for individuals with Down Syndrome. In preparation for World Down syndrome Awareness Day, we gathered together 42 Down's syndrome resources.

Bank check out these resource from the web, books, Facebook, Twitter and Pinterest and let usa know your favorite Down Syndrome Resources in the comments.

Virtually Down's syndrome

i. KidsHealth.Org

If yous are looking for a good site to help explain Down Syndrome to parents, teens and children, KidsHealth is the identify. KidsHealth provides simple explanations nigh Down's syndrome that is easy for people of all ages to understand.

two. PubMed Wellness

PubMed Health provides information for consumers and clinicians on prevention and treatment of diseases and conditions. PubMed provides a basic caption of Down syndrome including explanations on the causes and effects of Down's syndrome, the Symptoms and handling of Downwards Syndrome.

3. WebMD

WebMD gives a comprehensive overview of Downwards Syndrome and provides parents with basic data almost the support and resources you need once your infant is born.

Down's syndrome Organizations

four. National Downward Syndrome Society

The National Down syndrome Society (NDSS) is a nonprofit organization committed to existence the national abet for the value, acceptance, and inclusion of people with Down syndrome. NDSS provides a number of programs and activities including local support groups, Toll-free and email helpline providing information to over 10,000 people a year, and the National Policy Eye, the advocacy arm of NDSS which strives to protect the rights and remove barriers for all individuals with Down syndrome.

5. National Downwardly Syndrome Congress

Founded in 1973, the National Down syndrome Congress is the state's oldest national organization for people with Downward syndrome, their families, and the professionals who piece of work with them. They provide information, advancement and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and nobility of people with Down syndrome.

6. Down syndrome International

Down Syndrome International (DSi) is a UK based international clemency, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities. DSI focuses on awareness campaigns and training workshops to educate people virtually Down's syndrome and exist their advocate.

7. The International Down syndrome Coalition

The International Down Syndrome Coalition is dedicated to serving individuals with Down syndrome from conception throughout their lives. IDSC provides support to families who have been given a prenatal diagnosis of Downwardly syndrome. IDSC as well provides upwards-to-date information, resource and support groups for families with Down syndrome.

8. Band Of Angels

Established in 1994, Band of Angels provides back up for individuals with Down syndrome and their families. Through a commitment to plant greater understand and acceptance, Ring of Angels has been the voice of hope, inspiration and independence for persons with Down's syndrome.

Down's syndrome Research

9. Down Syndrome Inquiry And Handling Foundation

The Downwards Syndrome Research and Treatment Foundation is dedicated to finding a handling to improve cognition including learning, retention and speech for individuals with Down syndrome.  Since their founding in 2004 DSRTF has get the leading private source of funding in the United States for Down syndrome cognition research.  The website provides detailed information about the latest down syndrome enquiry and clinical trials besides as information nearly applying for a research grant from the foundation.

ten. Inquiry Down's syndrome

The mission of Research Down's syndrome is to aggrandize and raise life opportunities for individuals with Down's syndrome by funding scientific research directed toward the understanding and amelioration of dumb cognition. Research Down's syndrome educates and inspires a caring club to fund biomedical inquiry findings which will translate into safe and constructive, approved therapies to treat the cognitive impairment in individuals with Downward Syndrome of all ages.

11. Linda Crnic Plant For Down syndrome

The Linda Crnic Institute For Down's syndrome is part of the University of Colorado Schoolhouse of Medicine. Their mission is to significantly improve the lives of all people with Down syndrome and eradicate the ill effects associated with Down Syndrome. The institute has plans to be the globe's first "cradle-to-cradle," fully integrated institute for Down syndrome with the highest quality basic, translational and clinical research, clinical trials, therapeutic evolution, medical care, education and advocacy in the pursuit of the mission.

12. University of Stanford Center for Downwardly Syndrome Research

The primary goals of the Stanford Centre for Down Syndrome Research are to:
A. Promote clinical and bones research programs to sympathise the underlying causes of learning deficits and communication disabilities in Downwards syndrome.
B.Develop pharmaceutical and behavioral therapies for individuals with neurodevelopmental and neurodegenerative deficits.
C.Offer clinical programs for Downwardly syndrome individuals and their families.
D.Plan and execute clinical trials of promising therapies that can improve the lives of individuals with Down syndrome and their families.

13. UC-San Diego Middle for Down's syndrome Handling and Research

The Downward Syndrome Center for Research and Treatment (DSCRT) is ane of the first programs in the land to connect academic research with treatment of adults and children with Down syndrome. Their goal is to use cutting edge basic research to develop treatments that will help people with Down syndrome amend their noesis and forestall the onset of Alzheimer's illness.

Down Syndrome Blogs

14. Enjoying The Small Things

Kelle Hampton uses her writing and photography talents to bring yous into her family's life. Enjoying the small things is a corking read for moms who have a kid with Down's syndrome.

15. Down Wit Dat

Down Wit Dat is a web log by Jen Logan, a mother of three children; a boy and a set up of boy/girl twins. One of the twins, Wyatt, was born with Down Syndrome. Jen write nearly her life, medical research and advancement for individuals with Down syndrome.

16. Noahs Dad

Rick Smith documents the journey of his son, Noah through his early life. He also provides resources and tips about Down Syndrome and other special needs topics.

17. Garden of Eagan

Garden of Eagan is a blog almost life with a kid with Downward syndrome. This weblog covers the life of an older child with Downwards syndrome and is very interesting for parents with older children or  for those who desire to expect to the future.

Down syndrome Books

18. Flower: Finding Beauty in the Unexpected

Blossom is an inspiring and heartfelt memoir that celebrates the beauty found in the unexpected, the strength of a mother'south love, and, ultimately, the amazing power of perspective. The author of the pop blog Enjoying the Modest Things—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her girl Nella, who has Down's syndrome.

19. Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic

John and Martha Beck had two Harvard degrees apiece when they conceived their 2d child.  When Martha learned her unborn son had Down syndrome, she battled virtually everyone over her decision to go along the pregnancy. By the time her son was built-in, Martha, every bit she puts it, "had to unlearn virtually everything Harvard taught [her] nearly what is precious and what is garbage."

20. Downward Syndrome Parenting 101: Must-Accept Communication for Making Your Life Easier

Down's syndrome Parenting 101offers inspired takes on a host of of import issues, from learning to recognize and celebrate your kid's personality and gifts to finding a great teacher for him, and from insisting your child pull his ain weight to giving your child his infinite every bit an developed.

21. The Year My Son and I Were Born

InThe Year My Son and I Were Born, Kathryn Soper takes us along on her personal journey through Thomas's tumultuous kickoff year—as she strives to balance the loss of the kid she thought she would accept with loyalty for the baby she actually holds in her arms. Tin can she love Thomas for himself? Tin can she protect him from the earth'south insensitivity—and from her own doubts?

22. Route Map To Holland: How I Found My Mode Through My Son'south First Two Years With Down Syndrome

When Jennifer Groneberg and her husband learned they'd be having twin boys, their main business organisation was whether they'd need an addition on their firm. And so, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. This book is a resource, a companion for parents, and above all, a story of the love betwixt a mother and her son-as she learns that Avery is exactly the kid she never knew she wanted.

23. Count Us In: Growing Up with Down Syndrome

At ages nineteen and twenty-2, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, and dreams, their lifelong friendship—and their experiences growing up with Down syndrome. Their frank word of what mattered most in their lives—careers, friendships, school, sexual activity, spousal relationship, finances, politics, and independence—earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society.

Down's syndrome On Facebook

24. Circle 21

Circle 21 was the brainchild of a grouping of Toronto Moms that saw the need for an organization that would permit families of children with Down syndrome effectually the corner from ane some other and around the globe, to run across, substitution best practices, ideas and strategies, and work together to take on increasingly complex issues.

25. IDSC

The International Down syndrome Coalition provides amazing resources, photos and videos on their Facebook Page. They also offer over a number of Facebook groups with focuses on siblings, friends, family, losses and more.

26. Kids With Downward Syndrome

This Facebook page was started  so families of kids with Down Syndrome could connect and ask questions, share exciting new milestones, post pictures, or but become support.

27. Down's syndrome in Arts & Media

Downward Syndrome in Arts & Media provides a casting liaison service for individuals with Down syndrome and other developmental disabilities who want to exist actors and models. On Facebook the post Down syndrome resource and pictures with a focus on art and amusement.

28. Down Syndrome Family unit Network

The Down's syndrome Family Network is a network in which parents or caregivers of persons with Down Syndrome are able to admission the resources, support and answers they need to educate and develop the full potential of these individuals throughout their lives.

Down syndrome On Twitter

29. Global Down Syndrome

The Global Down's syndrome Foundation is dedicated to improving the lives of people with Down syndrome past supporting basic clinical & research & clinical care.

30. Canadian Downward Syndrome Gild

Canadian Down's syndrome Society (CDSS). The CDSS supports self-advocates, parents and families through all stages of life. On Twitter they provide Down's syndrome resource and spread the message of sensation.

31. Pamela Wilson

Resource, advancement and data on childhood disabilities for families of babies, children, teens and adults. My son has Down syndrome and Type 1 Diabetes.

32. Children'south Link

Offering resource and support links to parents and families who have children or young adults with Down Syndrome.

Down syndrome On Pinterest

In that location are some amazing Down Syndrome boards on Pinterest. Here are some boards that provide great images, quotes and Down's syndrome Resources.

33. Pedia Staff
34. Trivial Angels Special School
35. D Park
36. Nancy Streets
37. Suze Black
38. Megan Landmeier
39. Stephanie Martinez
twoscore. Debbie
41. Alyson Dunn
42. Sheri Burger

harborhemat1949.blogspot.com

Source: https://www.friendshipcircle.org/blog/2013/03/20/42-top-down-syndrome-resources-you-should-know-about/